In partnership with the Cystinosis Research Foundation
Cystinosis patients take on average 8-15 medications daily.
Tina takes 69 pills, two syringes, and one injection each and every day.
She also takes a medicated hourly eyedrop to keep from going blind.
Cystinosis affects fewer than 500 people in the United States.
Due to the rarity, there is little or no government funding.
All costs are underwritten, ensuring that every dollar raised goes directly into the hands of researchers.
All grants are made through the Cystinosis Research Foundation's Scientific Review Board.
Non-profit Organization pursuant to Section 501(c)(3) Federal Tax ID #80-0283749